The Evolving Idea of Home

A year after J & I staggered in the front door after our vagabond days and all our stuff, items, things have been loaded on the back of a truck and are headed north, to the new nest.

The family home has never changed. My whole life, the family has lived in this square house of wood painted white and a corrugated tin roof which gives wonderful voice to the rain. This room, which catches the afternoon sun and is just horrendous in summer, has always been my room, even when I haven't been in it. Chances are, it always will be. 

We've never moved. Not once. It's only recently that I've come to realise this isn't the norm. Most people move at least once as a family unit, then move out and don't boomerang back quite as often as I have. These lovely old gum trees and the soft rush of the wind through them is such an anchor. The way the floorboards creak is an old familiar voice. My idea of home is rooted hard into this one place, this kitchen where for over thirty years we have eaten so many meals. 

I made a good nest in Fairfield. Scotland let me make a marvellous nest, to the point where I do consider some idea of home to have permanently come to rest there. Something about understanding the currents of an ordinary life in what was once an unknown place. Something about feeling comfortable, about being allowed to be comfortable.

Ideas change, however, and while this house will always be 'Home', the day that J moved to Sydney it became a temporary abode until I joined him. 

Places can be home, can be sanctuaries from which the world is shut out and you are safe. People can be homes as well. 

I'm really, really, really excited about my new home. 

Tuesday in Melbourne

Don't need to learn about tickets or zones, no need to translate fare restrictions or look at gates in puzzlement as impatient locals queue behind you. No anxiously peering out the window at every station and check the line map every minute to be sure that you know where you're going, and that you're on the right train going in the right direction. No need to stumble around the station looking for the right exit, any exit. No need to stop and look at street signs and landmarks to decide on left or right. 

Of course it's a relief to be home. Of course it is.

I fell into a routine today. A pure indulgence in consumer daydreams. Visiting shops and flicking through racks of red, green, orange, blue, pink, all colours unrepentant. A European winter is a hard thing, I know this now, and I feel starved for colour. Melbourne delights in peacocks and parrots. It is not yet winter here. 

There's comfort in routine. Relief. Exploration of new land is always exciting, and it is also always tiring. To be constantly on the look out, not for danger or threats, but because the whole world is unknown, and so you must let the whole world in. No filters. Be aware, be always aware.

I sat down the back of a café, as far from the street as possible, and scribbled in my notebook, and didn't need to pay attention to anything beyond the page before me. No fear of emerging from the notebook to switch my awareness on again. Able to relax, and remain relaxed, and fear no mundane thing.

It's such a relief.

And yet-

Do you worry about burnout? Fear of fatigue haunts me like a considerate ghost, not intrusive but patient and present. Physical fatigue is something I am struggling to live with, and I daresay it will be some time yet before I accept and work with it, instead of fighting and being frustrated by it. Sitting in that café with the words coming so easily I gave some attention to the concept of mental fatigue, or emotional fatigue, or...would you call it fatigue of desire? The exhaustion of the heart?

Is it possible to use up your curiosity?

It is okay to be tired. It is okay to rest. Fallow time is a requirement not only of farmed fields but of life, all meadows of life. 

The 9-5 Mon-Fri will welcome me back and I'll none too willingly submit to the structure and safety promised within. But I am afraid my relief is too acute. I'm afraid the restlessness will not return. 

I am afraid if I stop I will not start again.

("And what happens to creatures of war when they stop moving?")

Slowly. Breathe slowly.

Trust your forever dissatisfied heart to bring change through its own lack of change.

Tuesday in Shanghai

"Dance like no one is watching."

I've always liked this sentiment, although of late the internet has turned it into some pithy Hallmark ideal meant to express our inner butterflies or some such. At any rate, I never dance like this. I'm either dancing like everyone is staring at me and I'm dreadfully uncomfortable with it, or I'm dancing like I Do Not Give A Fuck, which is exactly what I did in the Melbourne International Airport baggage hall, next to carousel 7, while we waited for our backpacks to appear amid the suitcases and boxes. It's the exuberance that comes from finishing 28 hours of flying and 1 and a half years abroad. It's the only home-coming dance that matters. (Internal soundtrack provided by Beyoncé and All the Single Ladies.)

Being in this room, at this desk, surrounded by these things, is surreal and bemusing. All these things. I remember each item, but the placement surprises me. Why is there half a bottle of cooking sake on my bookshelf? Why do I have so many boxes of stuff? All these clothes, what are they for? Do I really need these stacks of paper on my desk? I don't remember where these figurines came from. This box is a mystery. The contents of these drawers are unfamiliar.

This is the room of another person, yet I'm comfortable in it, and I'm comfortable using it, and the soundscape that slipped in the window at night was more home than any of these items.

No one knew what to expect of Sam. How does a dog react when his human, who has moved in and out of his home sporadically during his life, is missing for a year and a half? Would he even recognise me?

He didn't greet me as a stranger, there was no hesitation or trepidation in his approach. He and Sophie were all bounces and leaps and tailwags, as they always are. Yet he was confused, a little unsure. In fact, I'd go as far as to say he was blanking me for most of the day. I'd reach for him and he'd suddenly be distracted by something on the other side of the room that needed his attention immediately. J got more attention out of him than I did. However, when I crashed out and went to collapse on my bed – my bed! – he came with me, curled up beside me, and it was as if the intervening nights apart had never happened. He lunges at possums outside and out of reach and I scratch his belly in the morning.

Noisy mynahs in the eucalypts down the side of the house, being noisy. A flock of cockatoos has taken up residence down in the valley and were absent-mindedly raucous during the evening. A magpie warbled as I stood on the back verandah with a cup of tea in my hand and breathed that home air. The lorikeets morning chorus was slept through and I'm looking forward to the evening session.

I looked down on Australia as we flew over the red centre, which was lines of dunes and dust to the horizon, giving way to fields flattened by generations of ploughing, a lake whose water level was low and yet higher than I expected, and a colour palette that spoke of thirst and dry hearts and a heat-beaten brown I didn't know I could miss. In all the countries we've visited there was a wealth of water beyond our comprehension. Still, I cannot in good conscious waste water. Showers are not for loitering in. Don't flush on a number 1. The grass in the backyard is green, but as patchy as mange. Summer has not been kind.

There's a new fridge in the kitchen. I find I don't know where to look.

Hours spent talking with mum and my brother. Just talking. Just stuff. The internet, for all the damage it does to social dynamics, is a miracle and boon for those people far apart. I have not been out of touch with my people for all this time, yet nothing beats chatting about nothing while doing nothing. It's wonderful what has changed, and what hasn't changed at all.

I think I'm done for now. J has had his fill as well. We've put our bags down with the express intention of not picking them up again for a very long time. Every day for the past couple of months has been the unknown and unfamiliar. Every day learning how to cope with undrinkable tap water, how to best open the window to deal with an over-enthusiastic heater, what sign language is universal when attempting to identify meat at a restaurant, whether beer or wine is cheapest in this country. It's wonderful and confusing and frustrating and hilarious. It's adventuring small and large.

And now we are ready to be where we know the streets and where the best tea and pho is, we can drink the tap water and know what mixers are available and can send a shoutout to meet any number of friends at short notice and we know Melbourne, we know it and we don't have to think about it.

It is strange to be home.

I can't stop smiling.

Collecting Homes & Between Them

It's been only four days since leaving Glasgow, and yet it already feels like that moist cold flat happened to someone else in some other lifetime. Four days and three cities and three different sets of wonderful warm people. There was no snow in Glasgow, nor in Manchester, but the land all around is six inches deep in white and the powder growing as our double decker bus hurtled south. There's looking like a tourist, and there's gawping at snow hitting the window, stuck to trees and falling from the sky.

(The majestic turn of wind turbines made mysterious and magical in the blur of snow, against a snow-blank sky and anchored to snow-buried hills.)

Returning to places you do not know intimately yet have established a memory landscape upon is a curious deception. While I know the homes my friends have opened to me well, their city streets are hazy recollections. I have no idea of the layout of Manchester and Nottingham but managed to find tea shops I'd enjoyed in both and enjoy them a second time.

The sharing of such discoveries is a new thing for me, still. Perhaps always. J approves of one tea shop and disapproves of another. We both discover a retro game store and the oldest pub in England. He meets friends I have known so long yet have never met, and seeing that my friends also enjoy my friends is a cockle-warming delight.

This tour through England is something of a long goodbye, which is odd because it is Scotland that was our home. Somewhere between Glasgow and Manchester we crossed the border and it was a moment unnoticed and unmarked. I was probably dozing. Possibly snoring.

(J is intent on the 'hams' of England, having hit Birmingham/Burning Ham and Nottingham/Not A Ham and just now noted Grant Ham and Bing Ham on bus billings as they swing past the window.)

So many people- Wait, let me correct that. So many Scots asked me "Why Scotland?" There isn't really a neat answer to that question. It might have been due to Braveheart, or it might have been due to generic fat fantasy worlds harkening back to the shared delusion of what the Highlands are. Perhaps it was simply because it was far away, full of mist and crags and dark grass and all the things that weren't to be found in my backyard.

Now, knowing I won't set foot in that rich soggy land for some years to come, I can say definitively and certainly, it is because Scotland is my home on the other side of the world.

Last Meal: spag bog of CHAMPIONS

Evening, my train station, ambient noise

The birds haven't seen each other for hours and there is so much to tell. by sirtessa

Checking In

Move: Completed.
Unpacking: Not completed.



This: New webcam shots location. No longer facing the window, so lighting shall be a bugger. Must remove that tiger.

I have an ulcer, coldsores, shadows and bags, cough, cold, shakes and my arms are killing me, but the birdsong here is surprisingly thick and lively, the shower is decadent, and that's my boy Sam on sentry duty at the perimeter.

Mattress on floor,
Me on mattress,
Blinds pulled back,
Bats gone,
And one satellite flares, then dims, and crosses into the shadow of the Earth.

This is the last night in the home I made.

A Life's Punctuation; the Full Stop.

That is the last cup of tea.

It, more than anything else, signals the End of an Era. That's the last of the milk. Once it's drunk I'm going to turn the fridge off, and that will be it.





I feel I should say something about the importance of true and vigorous independence, what it means to call time and space your own without compromise, and, I don't know, stuff, but I am tired in many different ways. My heart is sore, my mind is confused, and I have nothing in me.

So, I will drink my last cup of tea as I have done on many evenings.



And watch the flying foxes come out at dusk.



One last time.

The Good, The Bad, And The Otherwise

Back in February 2010 I was referred to a specialist, a rheumatologist. He twisted my joints, poked and prodded, made a couple of comments about Asimov and sent me on my way.

My Doktor, upon receiving the rheumatologist's findings, gave me a "...wtf?" look.

Regional Pain Syndrome

The symptoms of CRPS usually manifest near the site of an injury, either major or minor. The most common symptoms overall are burning and electrical sensations, described to be like "shooting pain." The patient may also experience muscle spasms, local swelling, abnormally increased sweating, changes in skin temperature and color, softening and thinning of bones, joint tenderness or stiffness, restricted or painful movement.

The pain of CRPS is continuous and may be heightened by emotional or physical stress. Moving or touching the limb is often intolerable. The symptoms of CRPS vary in severity and duration. There are three variants of CRPS, previously thought of as stages. It is now believed that patients with CRPS do not progress through these stages sequentially. These stages may not be time-constrained, and could possibly event-related, such as ground-level falls or re-injuries in previous areas. Instead, patients are likely to have one of the three following types of disease progression:

1. Stage one is characterized by severe, burning pain at the site of the injury. Muscle spasm, joint stiffness, restricted mobility, rapid hair and nail growth, and vasospasm (a constriction of the blood vessels) that affects color and temperature of the skin can also occur.
2. Stage two is characterized by more intense pain. Swelling spreads, hair growth diminishes, nails become cracked, brittle, grooved, and spotty, osteoporosis becomes severe and diffuse, joints thicken, and muscles atrophy.
3. Stage three is characterized by irreversible changes in the skin and bones, while the pain becomes unyielding and may involve the entire limb. There is marked muscle atrophy, severely limited mobility of the affected area, and flexor tendon contractions (contractions of the muscles and tendons that flex the joints). Occasionally the limb is displaced from its normal position, and marked bone softening and thinning is more dispersed.

Upon reading the symptoms, I returned the "...wtf?" look to my Doktor.

The only symptom I had and have in common with this condition was pain. And you know, that's a symptom I have in common with, say, piranhas. Does that mean I have piranhas? No. No, it does not.

As such, we elected to overlook that diagnosis and continue with physiotherapy, which had been making significant improvements. For a while. Well. Yeah.

Hands started to deteriorate again, no matter what I did or did not do, which lead to the prescription of Cymbalta among other things, and, eventually, another referral to the rheumatologist.

My Doktor had specifically chosen Cymbalta as it has been proven to be effective in the mitigation of chronic pain. Curious, I asked my physiotherapist about the idea behind Regional Pain Syndrome and the theory my Doktor appeared to be latching onto in regards to overactive nerve activity and a brain that no longer filtered properly.

"Absolutely," she said. Although the problem with my hands may have started as a very straight-forward Repetitive Strain Injury, it had gone on long enough that the nerves would have changed with the conditions they found themselves in. In layman's terms; the nerves expect pain, so they make it. The brain expects pain, so it receives it.

I had my doubts when my Doktor explained his reason for the Cymbalta. Pain is not something that should be covered up. It's there for a reason, it's the best warning sign you get that something is wrong. There have been many, many steps backward on this "road to recovery" my hands have taken me on. One of the biggest was late last year. The Doktor had given me Celebrex, with instructions to take one a day for a month, and see how that helped. I was having adverse reactions to over the counter painkillers, and thankfully the Celebrex had no such effect. It's a slow-acting medication. Not designed for quick pain relief, but for chronic pain relief. It only kicks in after a few days, once appropriate amounts are in your blood.

It was lovely, being without that pain. Lovely.

At the end of the month, when I went off the Celebrex, the pain returned and was significantly worse than previously. I could only assume that without the pain to hold me back, I was working too much and not realising, and doing even more damage to my hands.

That terrified me. I wouldn't take any more painkillers after that, except at night when it was the only way I would get to sleep. The pain was necessary to keep me in check. I needed the pain, to listen to.

However.

I was getting better.

I could see it when my physiotherapist tested the tension in my nerves, and I could feel it when she went at my muscles and nerves with her frighteningly effective hands. I could feel it when I moved and when I stretched.

Improvement = more pain?

No comprende.

The rhuematologist twisted my joints and poked me hard enough to bruise and made some more comments about Asimov, and then wrote on a piece of paper "fibromyalgia" and peered at me over his glasses.

Fibromyalgia is a medical disorder characterized by chronic widespread pain and allodynia, a heightened and painful response to pressure...Other symptoms include debilitating fatigue, sleep disturbance, and joint stiffness. Some patients may also report difficulty with swallowing, bowel and bladder abnormalities, numbness and tingling, and cognitive dysfunction. Fibromyalgia is frequently comorbid with psychiatric conditions such as depression and anxiety and stress-related disorders such as post-traumatic stress disorder. Not all people with fibromyalgia experience all associated symptoms.

"I've seen this," I said. "When I was reading up on Cymbalta."

He gave me his recommendations - to raise the dose of Cymbalta or stay on Celebrex indefinitely - and sent me on my way.

My Doktor was well pleased to hear this, his hypothesis being confirmed by a second source, until I pointed at that at the current dosage of Cymbalta I had noticed no different in pain levels and given the somewhat UNRELENTLINGLY ARSEHOLEY side-effects currently afflicting me, no way in hell was I going to start a higher dosage.

And that's where we are now. I'm to stay on 60mg of Cymbalta for the next couple of months. Should the current side effects of RAGING INSOMNIA and SOB-INDUCING RESTLESSNESS abate, I will try a higher dosage in the hopes it alleviates my chronic pain. If not, I'll drop back to 30mg of Cymbalta and stay on Celebrex for...however long.

I've done my reading around on the intertubes, and I have my reservations about the diagnosis. Fibromyalgia itself is something of a controversial condition, and when I look at the symptoms and requirements of diagnosis, my face gets a little skeptical. I'm not sure I tick all those boxes.

But, what my physiotherapist said makes sense to me, and she is the one who knows my condition best. I trust her opinion.

The majority of those I have shared this diagnosis with have expressed quite sharp-edged dismay, to my surprise and gratitude. Yes, well. The idea of living with chronic pain isn't exactly a happy ending. It's not something that really featured in my plans for the future, you know?

That said, I'm descended from people who pay sweet bugger all attention to pain. They shrug off cuts and don't notice bruises, strain and pull and twist things and simply treat them gently till they've calmed down, barely even notice when they're sick because, hey, it isn't actually stopping them from getting on with things. One of the problems in talking to my medical posse about my hands, for the entire duration, was being able to express the "level" of pain. When it's bad enough to keep me from working, then I notice it. Beyond that...look, I'm uncomfortable all the time, so I don't really pay it any attention, sorry.

The pain was there to stop me from doing damage. If my nerves are simply crying wolf, and there is no damage being done?

Fuck yes I will live with chronic pain. Fuck. Yes.
Fuck yes I will take medication indefinitely. Fuck. Yes.

Because what this means is the damage is not that bad. What this means is physically I can and am recovering.

What this means is I can think about writing.

I have a future, again.

BOOYAH.

Which isn't to say I can throw all caution to the wind. I'm currently filling another position at work, a role that involves more computer work than my own, and combined with the recent spate of blogging; I feel it. Oh boy am I feeling it. Ouch. Ow. Argh. Getting a bit carried away with this heady air of possibility. Oh air. Oh air.

This may be the first breath I've taken in 21 months.

Nihao! Tashi Delek! Namaste!

Dude. Running water? HOT running water? All the time?
Toilets? That are clean? And not pits? That are Western style? That I am not afraid to put my bum on?
...fruit?

Holy goats and caviar, Batman, I must be home.

This New World Order doesn't look all that different from the Old World Order, I must say. That's okay, I'm cool with that. Some creature comforts are certainly welcome right now. I haven't done laundry for more than two weeks, and I think I've only showered 30% of those two weeks as well. Still, I've seen Qomolongma aka Everest 3 times in 4 days.

How've you been?

(Shark Puppet would like it known not all of those finger puppets are staying with me. Some are presents. He wouldn't let me bring home a whole football club of puppets.)

Home: Three Things I Appreciate

Water

In the month I spent in Chile and Argentina there was only one place that had drinking-quality water on tap. That was in Torres del Paine, and was purely because, being in a national park, the refugio had to be entirely self-sufficient and didn't have the option of nipping around the corner to buy water.

Water was kept on the truck in jerry cans, with water purification tablets thrown in. The other option, if you did not happen to have your bottle handy or were not near the truck, was to buy water.

I take the presence of drinking water for granted, yet I do not. I don't seem to have much in the way of water retention given the speed at which I dehydrate and start to feel bad, so I always carry water on me. I've fainted a few too many times not to. What I take for granted is being able to fill up from any tap.

I was constantly buying water, and feeling guilty for churning through so many plastic bottles, and getting my ire up at having to pay for water in restaurants.

It drove me nuts. Sobering to think that there are people who don't even have non-drinkable water on tap.

Fruit

Actually, I gripe about this whenever I get back home from overseas. Australia is just insane for brilliant fresh produce. Patagonia, with the distances and largely arid land involved, is not. The fruit was limited to the basics - apples and bananas - and they were sad little things. I practically live on fruit. My body was starving for vitamins within a couple of days. I've been gorging myself on nectarines and apricots since getting back. So far, in my not particularly wide sampling of the world's bananas, Australia is a clear winner.

Toilet Paper

Outside of Buenos Aires, there is no toilet paper in the public toilets. For a day or so there I was living very dangerously. It's nice not to have to carry a wad of toilet paper in my back pocket. Just sayin'.

Y HALLO THAR

• Aerolineas Argentinas sucks so badly I won't allow them the privilege of sucking my non-existent balls.
• I'm rostered to work at 7am tomorrow (and have already marked myself off as sick).
• Tomorrow also contains an 8 hour power outage for my street.
• Ahhh, tea.
  

HOME

That is indeed the same tee as in the last photo.
Tea before shower is totally acceptable.

contrary

I just caught up with all currently followed blogs and feeds, and-

Maybe having internet access is a bad idea.
Maybe I just need to reinstall an emotional buffer.
Maybe there should be no contact with the world after midnight.

I feel pummelled and overwhelmed and sad.

Everyone I owe stuff to; it's coming. You know, eventually. Sorta.